A Memoir of Medical Bias—Bless the Blood: A Cancer Memoir by Walela Nehanda

the cover of Bless the Blood

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Bless The Blood: A Cancer Memoir is a striking book that gets under your skin and stays there for days afterward. Though billed as a YA book, the writing and story hold a depth of feeling and insight that will engage far older readers, too. Hospitals, homes, intimate relationships and even one’s own skin are explored as sites playing host to complex histories. Framed by references to Cynthia Parker Ohene and Audre Lorde, Walela Nehanda threads a poetics of class, race and gender that shows how those constructs tangibly mediate who has access to certain spaces and their attendant expectations of care.

There is wisdom in Nehanda’s depiction of the ways relationships function as spaces for the people in them. And inversely, how spaces are shaped by the connections people make there. Some books really get to the heart of that old saying “a house is not a home”—this is one of the few that goes further by suggesting that a body isn’t always a home, either.

Teeming with generational trauma and an aching love-hunger that breaks through in paragraphs and poems about sickness, recovery, affection, intimacy, and history, this is a book that refuses to be reducible to inspiration porn. There is a lot of unvarnished pain here: it beats and seeps and leaps out of the page, sinking into the sorest parts of anyone who has ever found themselves at odds with their body, anyone who has ever felt the acute violence of having their bodies treated as alienable. 

But these recollections are accompanied by memories of healing and true connection that remind me of one of my favorite aspects of queer media: the defiance of portraying communal moments of revelry and unapologetic joy. These moments offer a small antidote to the seemingly incessant indignities Nehanda encounters in trying to access care through institutions that diminish compassion into a sort of charity contingent on the seeker’s performance of acceptable respectable acquiescence to unjust norms. It is a keenly relevant story, and only becoming more so as the conversation and activism around medical bias gains momentum.

The book’s archetypal figures and icons are also from a media moment that younger readers (I’m including twenty-somethings in this), will find timely. Close readers might be left wondering why there is more “prestige” in the exploits of long-dead hellenics than Captain American or Black Panther—and how our insistence on pretending that the former are more universal than the latter only goes to show how deeply those stories have been decontextualized in service of modern myths about what is “natural” or just.

I will admit fully that I am very partial to this sort of mythic deconstruction. I appreciate authors who staunchly refuse the opiate of presumed objectivity and instead fiercely reckon with the implicit messages and specificity of our shared stories. There is a passion in these pages that I found refreshing, and which I hope this review does justice to.

Who Will Enjoy This: People who thought The Remedy was poignant, timely and want to read more deeply personal stories about the struggles of accessing care (both medical and otherwise) as a gender-expansive person of color (here, a Black person in America). People who enjoy memoirs in verse, or poetry about the poet’s relationship with their body and others. People who think “formalism” is another word for “limitation”. People who enjoy science fiction metaphors for biomedical ideas.

(Seriously, Nehanda’s description of leukemia and their body as a besieged planet is all I’ve been talking about to anyone who will listen for the past week)

Who Might Think Twice: If you’re currently dealing with healthcare bias and difficulties of your own, this book will either reassure you that you are not alone or leave you emotionally exhausted. Your miles may vary. Nehanda pulls no punches in either their remembrances of or their viscerally unflinching depiction of their pain.

Danika reviews Kimiko Does Cancer: A Graphic Memoir by Kimiko Tobimatsu, illustrated by Keet Geniza

Kimiko Does Cancer: A Graphic Memoir by Kimiko Tobimatsu, illustrated by Keet GenizaKimiko Does Cancer is about about a queer, mixed-race woman getting breast cancer. This is a short book, only 106 pages, and it moves quickly: the first page is about Kimiko finding a lump above her breast, and then it moves through her diagnosis, treatment, and the aftermath. Tobimatsu explains in interviews/articles that she wanted to write this book because the mainstream narrative around cancer didn’t include her experience. She wanted other queer people with cancer to have a reference that better reflects their lives.

For one thing, she comes into this experience already skeptical of doctors, especially around sexual health. One panel shows a doctor saying, “Only women who sleep with men need Paps,” (labelled on page as “Bad medical advice”). This is something that I was also told by a doctor, after she blushed and seemed flustered when I told her my sexual experience was with AFAB people. Although she’s grateful for her medical team, she also finds it overwhelming, especially when they give different advice. She also continues to face similar microagressions: a doctor who assumes she’ll immediately want reconstructive surgery on her breast before asking her–Kimiko had been interested in exploring what a mastectomy would mean for her exploration of gender. Later, another doctor asks if she’d like both breasts enhanced as long as they’re “plumping” one.

In her article on Rethink Cancer, she explains,

I didn’t want to talk about how to recover my sense of femininity despite breast scars and menopause; I wanted to explore how losing my breasts might allow me to lean into my masculinity. I didn’t want to talk about how changing femininity could affect a hetero relationship; I wanted to talk about the implications of breast cancer on queer relationships between women.”

This genderizing of breast cancer extends outside assumptions around patients’ relationships to their breasts. In “Straight Cancer in a Queer Body” at The Polyphony, Tobimatsu explains,

Whether we know it or not, ideas around gender are frequently at the forefront of conversations about breast cancer. Little is as connected to notions of femininity as breasts, hair and fertility – all things that can be lost following a breast cancer diagnosis. Perhaps for this reason, society’s response to the disease is to throw pink ribbons, make-up tutorials and a peppy outlook at the problem. For many queers and gender non-conforming folks, this feminization of the disease is stifling…

A page from Kimiko Does Cancer showing Kimiko meeting three women in a cancer support group. They introduce themselves and then transform magic girl style into feminine fighters. "I'm Macy, Stacy, Lacy! We're survivors, fighters, warriors! We kick cancer's butt! And look good while doing it~"

Page from Kimiko Does Cancer

Not only is Kimiko uncomfortable with the whiteness and heteronormativity/gender norms, she also is alienated by how apolitical these spaces are. Kimiko considers the ethics and greater implications of each of the choices she’s making in this journey, and the structure around them. She recognizes the privilege she has to be in Canada and have the medical support she does, and the special treatment she gets as a young cancer patient. She contemplates the ethics of freezing her eggs for $7,000 when she’s not sure whether she even wants kids–or whether it’s ethical to bring kids into a climate crisis. On top of that, she feels pressure to have had some great epiphany as a cancer survivor: to have a whole new outlook on life, and no longer care about the “little things.”

Kimiko Does Cancer follows the aftereffects of her treatment as well. She has menopause induced to (hopefully) prevent cancer from recurring. This leaves her with hot flashes, which play a major role in her life. I had no idea what having hot flashes really entailed:

Page from Kimiko Does Cancer shows stages of a hot flash, including anger, raging heat, hunger, and more.

I highly recommend this book, and I hope that it finds its way into the right hands. I’ll leave off with one last quotation from the author, who explains the importance of changing this narrative. She explains that vague cancer fundraisers often get more attention than specific actions needed to improve marginalized peoples’ lives. (And of course, it’s all connected: racial justice and ending poverty are inextricably linked to health.)

When we centre certain bodies and not others, it has dire consequences – black women with breast cancer get diagnosed at later stages than white women and have lower survival rates… By depoliticizing cancer, it becomes an easy cause to support. Pink ribbon campaigns offer a way to give money to an easy-to-sympathize-with-cause that doesn’t force engagement with more difficult issues like poverty or racial justice.

“Straight Cancer in a Queer Body,” The Polyphony

Danika reviews The Family Tooth by Ellis Avery

familytooth

As soon as I finished The Last Nude by Ellis Avery, I immediately added her to my mental list of favourite authors, despite the fact that it was the only thing I’d ever read by her. Some stories are like that. The Family Tooth is a very different book, but it definitely has helped secure her place on that list.

The Family Tooth is a memoir composed of linked essays. Some of these are available as Kindle singles, or the whole book is available zine-style in the author’s Etsy shop. At first glance, it can seem disconnected. The essays cover Avery’s grief over the death of her mother, as well as her journey through dealing with severe arthritis and later cancer, partly through radically restricting her diet. Because they do concentrate on different subjects, the essays can stand on their own, but I think they’re much more powerful when read in sequence.

In the introduction to this collection, Avery warns that part of this purpose of these essays is to detail her discoveries about treatment of her illness so that other people with similar symptoms can use her research to help in their own lives. She encourages the average reader to skip these dry medical passages. It’s a testament to Ellis Avery’s writing that I realized at the end of the book that I had totally forgotten this warning, and despite the detail given, I had never noticed any “dry” segments.

The book begins by discussing her mother’s death, and the complex relationship Ellis Avery had with her mother–an alcoholic and emotionally distant figure in her life. Later essays that are primarily concerned with Avery’s illness still bring in this processing, including thought-provoking parallels between her mother’s life and her own that recontextualize and complicate the initial impression we have of her.

It’s Avery’s writing that really makes these essays stand out. She knows just how to give a detail or mental image that elevates the whole narrative. She weaves in lines that link these disparate subjects together effortlessly. I found myself reading lines out loud to my roommate, and at one point we both paused after I read out a sentence and then said simultaneously “That’s such good writing.”

Grief memoirs and illness memoirs are not usually genres that I gravitate towards, but I will continue to read anything this author decides to write, and I would recommend you join me.